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Title: Disclosure of positive BRCA1/2 mutation status in young couples: The journey from uncertainty to bonding through partner support.
Authors: Hoskins LM,  Roy K,  Peters JA,  Loud JT,  Greene MH
Journal: Families, Systems, and Health
Date: 2008 Sep
Branches: CGB
PubMed ID:
PMC ID: not available
Abstract: BRCA1/2-positive women who learn their mutation status early in the life-course face unique challenges related to navigating the tasks of young adulthood. Using qualitative methods and grounded theory, we analyzed in-depth interviews with eleven women aged 26-35 who learned their mutation status prior to marriage. Their narratives illustrate the complexity of relationship formation, and highlight the potential for relationship-bonding and intimacy-building in the course of sharing mutation information. Disclosing BRCA mutation status to dating partners is often preceded by feelings of fear and anxiety, yet many participants reported that doing so has positive effects on relationships. Partners abilities to respond with interest, empathy, and affection are associated with increased future intimacy, consistent with generally accepted principles within the family/couple systems field. Individual cancer risk perception and familial cancer experiences may affect the disclosure experience, which can be understood via Attachment Theory. Our findings provide clinical insight, identify new areas for research, and suggest ways to assist this unique population in their adjustment to being BRCA mutation-positive.